This is Part 3 of my Conquering Celiac Disease series which outlines my personal experience with Celiac Disease. The other posts in this series include:
Disclaimer: I am not a doctor and the information provided in this post is not to be used as medical advice or to treat/diagnose any disease
OK let’s go. I have sat down 5 times to start writing this…
I have Celiac Disease.
I successfully manage it with no side effects. However, I do not subscribe to the “just go gluten-free” only club.
Instead, I understand that Celiac disease, along with any autoimmune disease should be treated by understanding that something has triggered this disease. But I’ll explain that more, later.
My understanding and approach did not develop overnight. It took me years of research, multiple doctors and a very smart wife to help me know how to handle my disease.
I’ll tell you exactly what I’d do if I just received a Celiac Disease diagnosis.
Let’s say I were just diagnosed.
I would probably type Celiac disease into any search engine, click pretty much any reputable article, and my solution-set seems straight-forward. It is also the treatment my doctor gave:
But, I just said that I don’t subscribe to that fanfare. I know now that going gluten-free is only a small portion of the answer.
Knowing what I know now, the first thing I’d do is transition to a gluten-free HEALING diet.
You see, I used to eat the Standard American Diet. The acronym is telling: SAD.
Why is the SAD diet oh so sad?
Mainly because it lacks the balance and breadth of vital micronutrients that our bodies are screaming for. It’s loaded with highly processed, sugar-filled and fried foods, poor quality meat, and low quantities of vegetables and other fresh produce.
Plus, it doesn’t have a proper balance of macronutrients to help sustain all of our body’s vital processes and peak organ function.
So, instead of ranting for way too long, I’ll just say that the trick to going gluten-free isn’t just doing a 1 to 1 swap of gluten-full flour to gluten-free flour (and everything that flour makes like pizza, pasta, pastries, etc.).
Instead, I would get rid of the gluten (it’s still mandatory since Celiac disease is literally triggered by the stuff), but start slowly (or quickly if palatable) by pulling out flour, starch, and all processed gluten-free foods that come in a box or bag (which are usually made from flour) as much as possible.
Not the flour!
Yes the flour.
All that gluten-free flour is converted into sugar once in the body. And sugar is one substance that is surprisingly dangerous.
Rather than list all the scary stuff, how about reading this short article about how not eating processed sugar can make anyone feel better? And it’s not limited to just those with an autoimmune disease like Celiac.
Reducing flour/sugar is especially helpful for reducing inflammation, which is sort of what an autoimmune disease is: chronic inflammation.
On average, I might consume 2 tablespoons of gluten-free flour a day, minimally processed, and organic whenever possible. This is what makes me feel the best, especially now that my body has adjusted to eating less blood-glucose affecting foods.
So, to recap:
- Remove the gluten! (no cheating and be sure to educate yourself about HIDDEN sources of gluten and common ingredients in packaged/processed foods that contain gluten)
- Reduce processed sugar, especially flours. And remember gluten-free junk food is still… JUNK.
(If you’re not convinced, read Dr. Mark Hyman’s article on why a gluten-free diet doesn’t necessarily mean healthier.)
But I’ll be honest, this is just the first step. What I’m after here is a HEALING gluten-free, nutrient dense diet which means…
Eat them. Just. Keep. Eating them!
At first, like any good American child (or adult), vegetables seem icky and gross. But eating them after only a short period of time causes your body to do something amazing.
CRAVE them. Sometimes in an obnoxious way that makes you do crazy things like drink vegetable juice.
You won’t be able to get enough! And the best part is, they fill that void I mentioned earlier. Eating more veggies gives the body way more of the precious micronutrients than the SAD diet.
The nutrient density in plants/vegetables is specifically what many American’s are lacking. I try to get at least 6 servings a day.
But I still need to round out the other piece to this puzzle.
Proteins and FAT.
Yep. This category is the one that gets every American (male at least) salivating.
As you probably guessed, there are some changes to be made here too, in relation to the SAD standards anyway.
Fat first. Pretty simple, eat more GOOD, high-quality fats. Oils like olive, avocado, and coconut are great for individual reasons. But then there are animal fats as well!
I use pork lard all the time for roasting vegetables in the oven, or sautéing vegetables and animal proteins.
Protein on the other hand goes in the opposite direction. Unless you plan to train for a competition, protein intake from muscle meat doesn’t need to be so high. A good figure is 6 oz. of meat per day.
But I’ll admit, diets are tricky.
Wanna know why?
Because I’m not you, and you’re not me!
We all feel a little better or little worse when we play around with the ratios of carbs-fats-proteins because we all have different gut microbiomes (bacteria composition), genetic make-up (mutations and family history), and activity levels.
But the reason I pay so much attention to my diet is because it plays a huge role in controlling inflammation levels. Which means that autoimmune symptoms can disappear just by eating the right balance of healthy foods (to a degree).
Plus, the body doesn’t have to work as hard to find the nutrients it needs to function optimally.
So, if I were diagnosed today my diet would look like this:
- NO gluten
- Less flour and processed sugar
- Way more vegetables (6+ servings/day)
- Less meat (6-10 oz./day)
- More healthy fats (4-6 Tbsp/day)
- Organic whenever possible/maximize nutrient density and intake
I did leave one thing out though, and that’s my issue with dairy, beans, and corn.
I avoid these foods because I have allergies/sensitivities to them. Therefore, I stay away so I do not trigger other autoimmune related issues – particularly another disease.
One way to find out what nutrient deficiencies you have, additional food allergies/sensitivities, and how to find the root cause (and possibly put your autoimmune disease into remission) is by seeing a functional medicine practitioner and experimenting with an elimination diet like the Autoimmune Protocol.
So, the second thing I would do after I started a healing diet is RUN to a Functional Medicine Practitioner (FMP).
If you aren’t clear on what a FMP is check out this post to get a better idea.
In short, they are doctors or practitioners (meaning non-doctors, but someone who still practices medicine, like a chiropractor) that work in a holistic way to build the body back up and find the root cause of disease.
Having gone myself, I was able to uncover so many uncommon deficiencies and unearth reasons as to why a gluten free diet wasn’t the cure-all for me.
For example, after one appointment and 3 tests (stool, saliva, and blood/urine combo) I learned the following:
- I am deficient in vitamin B6, magnesium, folate, vitamin B12, CoQ10
- I have Exocrine Pancreatic Insufficiency (EPI)
- My cortisol is low in the morning (under normal conditions)
Any doctor can determine/discover these things. However, I went to my general practitioner 3 times and gastroenterologist twice just to tell me I had Celiac disease and to go gluten-free…
That just seems like a lot of appointments for a grand total of 2 hours worth of face time and only a fraction of the answer to my health issues.
Whereas, my first FMP visit was 2 hours and I already knew that I had Celiac disease. Imagine the number of appointments I would have saved going straight to the FMP, plus everything else I would’ve learned.
If you’re ready or searching for a great FMP, use our checklist to find the best one for you by subscribing to our newsletter below!
The Benefit of the FMP Approach
The real beauty of a FMP is that they look at the body as a big system and for the root cause of disease.
These two concepts go together like PB&J (gluten-free of course).
Some interactions that take place in the body are uncommon or challenging to connect, but treating the body as a single system makes these interactions difficult to ignore. As a result, many FMPs look closely at a person’s gut:
How is food being digested? Is there frequent diarrhea, constipation, bloating, and other gastro-issues? What is the frequency of BMs (bowel movements) and is there discomfort?
All of these questions start in the gut, but INTERACTIONS that you might not consider are:
- Mood swings, irritability, depression
- Brain fog
- Exhaustion and drowsiness
- Skin rashes/irritation
- Dry skin
- Food and/or environmental allergies
- The list goes on!
These symptoms can be linked to poor gut health (also known as leaky gut) and autoimmune disease. FMPs look closely at the gut, and typically first, to make sure that the body’s individual systems can work as a single system seamlessly!
Naturally, being diagnosed with a gut-related autoimmune disease like Celiac, I would like to see a FMP right away to get my leaky gut in order. With his or her guidance, I would learn about incorporating gut healing foods into my diet such as fermented vegetables (like real sauerkraut), gelatin, coconut oil, collagen, and possible probiotic supplementation.
Once that cat is back in the bag, I can focus on things like indirectly related illnesses such as EPI, nutrient deficiencies, and anything else that isn’t cleaned up by fixing my leaky gut.
And what about the roots?
Have you ever tried to remove a tree by continuously cutting it down to the ground, but it just keeps coming back?
The reason it always returns is because you are missing the root. And what’s great is that Functional Medicine Practitioners target the root of disease!
Addressing the roots of a disease means it won’t come back. No “new branches” that look like other autoimmune diseases or chronic illnesses.
Not commonly discussed, leaving an autoimmune disease unchecked may not only lead to worse symptoms of your first diagnosis, but can also lead to a second or third disease. This happened to my wife, Anna who was diagnosed first with Hashimoto’s Thyroiditis and then Lupus years later.
To possibly avoid this:
- Find the root cause ASAP and address it
- Strengthen your body by reducing/eliminating the bad habits that helped trigger your disease in the first place
You can help your body to begin healing and start the recovery process by making lifestyle changes. Without knowing the root cause of your disease though, you could end up continuing to get worse.
So, by now, I would:
- Be totally gluten-free
- Change my diet to reflect the things that maximize my health and how good I feel
- Have a great partnership with a functional medicine practitioner (or team of great docs I can work with).
This should be it right?!
Not just yet.
The final step that I would take would be to start living the autoimmune life (once again, NO CHEATING!)
I know what you’re thinking… What IS the autoimmune life?
The autoimmune life is challenging but simple.
Simple. Because it is simply your new life, filled with all of the changes that you will make to accommodate your disease (diet, working with a FMP, etc.).
Although, I like to mention that changes are only changes when they are new, which is great news!
Eventually, any change becomes second-nature and requires (WAY) less brainpower to perform – basically a series of habits.
But what kind of challenges do we have to face…
Social Gluten Pressures
Not being able to eat gluten confuses people. Seriously, unless you have to know what gluten is, it becomes the greatest mystery second only to the Holy Trinity.
For instance, I have received this question before: “Oh, wow. You can’t have gluten? So… that means you can’t have rice or potatoes?”
You can’t blame them! Gluten is just a word until you explain it, and then the question changes to the following statement:
“WOW! You can’t eat ANYTHING!”
So you get some sympathy points, until you remind your “best” friend that you can no longer eat at her party tomorrow. This is where things get dicey and social pressures become clear.
The minute you tell someone that you have to bring your own food, can’t eat theirs, or ask them what the menu is in case you can’t eat… the world instantly catches fire.
Don’t get me wrong, lots of people are extremely accommodating, but some just don’t like change, so I am obligated to write this warning.
The trick in these matters is to STAY STRONG. Don’t buckle at the first sign of resistance, because gluten is the number one enemy, and just like the devil, he tries to manipulate those around you to want more (bread).
So be warned, and be ready – opposition will come your way at least once. But YOU GOT THIS!!
Unless you get surprise attacked by accidental glutening.
Even if you are open and honest about gluten, it isn’t always that way with you. Why do you think they make gluten-free soy sauce? Read the back of a typical (gluten-filled) bottle, and you’ll see they don’t even mention that gluten is lurking within!
Gluten hides and goes by different names. It’s not some malicious person drumming their fingers together behind every wall waiting for you to become inflamed though…
Nope, just an industry that hasn’t caught up yet. To help, I would start with these articles by Dr. Amy Myers to learn where the gluten lies (pun! lol).
But even if you know your hidden gluten, there are chances that restaurants can accidentally add it in. If that happens follow the protocol in our Emergency Guide to Accidental Glutening which can be found in our free members-only toolkit. Just sign-up below for the password.
One other piece of advice is to question, question, and question again that they will make your food safely. Once you get the food, inspect it, and then question if it has gluten. This has saved me countless times.
Or… I would just do what I do now.
Make 99% of what I eat from scratch! Eventually, it becomes a VERY tasty habit (better than most restaurants and that’s no lie!).
Last, but definitely not least – wash your genes!
I mean really get in there and scrub those puppies.
The puppies I am referring to isn’t so much actual genes or DNA, somehow that would probably hurt.
No, I am talking about kids (if you have any)! I have an autoimmune disease which means my kids have the potential (about 25% chance) to receive the same gene(s) that cause my autoimmune disease.
In my case, my kids are very likely to have one since Anna (my wife) and I both have autoimmune diseases.
And it makes sense that I have one since my mom has one (rheumatoid arthritis) and my cousin too (Lupus and Crohn’s)!
So let’s talk about how I plan to wash my kid’s genes so their risk is not as great. It’s simple really, I’m going to raise my kids with my current autoimmune-friendly lifestyle!
That’s it! (told ya it was simple).
If every lifestyle change I make helps to reduce inflammation (by default chronic inflammation, i.e. autoimmune disease), then my kids become significantly less likely to develop one of these diseases.
That’s what I would do if I was diagnosed with Celiac disease today.
Celiac disease isn’t that tough of an autoimmune disease. It takes some initially difficult changes, but once they are made, life can return to normal (mostly). Even the conventional team makes claims like this.
However, making one change like going gluten-free, even if it makes the symptoms go away, doesn’t mean you are healing your body.
That’s why I have made all of these amendments to my life, and would make them all over again. But faster!
I’d go gluten-free and stay that way using a healing, nutrient-dense diet. Then, I’d find a FMP and learn what I need to do to heal my body and seal the cracks. And finally, I’d learn how to maneuver the changes in relationships and lifestyle (including my kids).
THAT, is what it takes to heal from Celiac disease, and that is what I would do – today.
So if you’re struggling or lost, feel free to email me at firstname.lastname@example.org. Or, if you just want to see what we are up to, follow us on Pinterest and Facebook.
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Hey there! I’m Frank, co-founder of Healthy Habits Reset. My wife, Anna, and I have battled our respective autoimmune diseases for over a decade. We have fumbled through and eventually learned that REAL mental and physical healing requires you to be your own advocate, to think for yourself, and to determine what information works for YOU.
We created this blog to teach everyone how to use the resources and tools available to make the best personal decision surrounding any health, faith, and lifestyle choice.